Today is a day I don't want to go through again for a long, long time.
My beautiful, wonderful four year old nephew has spent eight hours having surgery on his heart. He now has a goretex artery. He really only has one functioning chamber, and had his first op two years ago to help re- plumb him and keep him going until he was big enough for today to happen. His situation is extremely rare.
Over the past months he has been getting more tired, breathless and blue on a bad day. Oxygenated blood gets round his body more by luck than by design, hopefully today will change all of that.
It's so easy to forget he's not a normal wee boy. He is a cheeky monkey, who is learning his way in the world, obsessing about Ben Ten watches, demanding just one more story and refusing to eat certain things although he loves broccoli and asparagus! His 'go faster stripe' or 'zip' is, of course, a constant reminder.
He is the most important person in my world. I don't have kids, but I do have him. He lives round the corner and we see each other often. We have things that just he and I do together. We're growing a miniature garden at the moment. It would have been all tomatoes if he'd had his way. Instead there are beans, broccoli,carrots, potatoes, pumpkin and some ill looking radishes. And, tomatoes. We laugh and he hates snails. He gave me into trouble for throwing one into the next garden the other day. He reminded me that I should be 'nice and kind'. Sorry snail.
He is still intensive care, and being sedated over night. He has been in my thoughts, hopes and tears today. The dreadful thought of it all going wrong and the pain that he will be in when he wakes nagging me. The endless hours, minutes and seconds endured by my brother and his wife. The thoughts of eating his first home grown radishes and learning to like bugs keeping me going.
He is OK. He is not there yet, but he is strong. He will get through and we will all be right there beside him.
He is alive.
Showing posts with label faith. Show all posts
Showing posts with label faith. Show all posts
Tuesday, 1 June 2010
Monday, 19 October 2009
Is there anybody out there?
I kind of underestimated the importance of spirituality to me in connecting with other people, and writing last night has reminded of its impact for me in relationships and attraction.
Of the encounters below, I've had two conversations on the subject – from completely different perspectives. One with a man who, in his early forties, has decided that after all he does believe in God, and hasn't quite decided what that means for him yet. He is open to exploration and acknowledges his views will grow and change.
The other was an adamant atheist. An atheist who was scornful about those who do hold religious views, have a faith or any kind of spirituality or curiosity. He's made his judgement, and believes himself to be correct and all others wrong. This was a huge turn off.
Until my parents became ill about five years ago, and caring responsibilities kicked in with full force, I did believe in God. I haven't ever rejected God, but instead found myself abandoned. That sense I had of a dialogue disappeared. I was upset by this, and sad that when I needed someone, something, anything to bring relief to my life that that solace and refuge had gone.
I'm not a great fan of religious dogma and I've always struggled with the church as a formal institution (although I do appreciate the community that it offers). Over the years I've explored my faith (or lack thereof), read and discussed the issue with many. I've engaged with it. I've listened and I've challenged my views. I respect the choices and beliefs of others. It is not for me to judge, which is why the staunch atheist's dismissals irritated me. It told me more about him as a person and his limited degree of empathy than many conversations might have.
The uncertain believer was open to listening, sharing, acknowledging and not judging, which in itself surprised me. I've known him for many years, ordinarily he's man of very strong views - politically and otherwise.
So, where do I stand on all this now? I would loosely describe myself as Christian Humanist.....it's the closest I can get to something that makes sense. But, labels are only labels.
A sense of spirituality exits for me, in that I do think about these things and I'm overawed by moments in life that go beyond and by beauty in its many shapes. These moments, however, are often very ordinary.
If spirituality is a journey of understanding, seeking wisdom, value and hope, looking harder and deeper and acknowledging that there is more than the individual, then it is important to me and the connections that I make.
The 'Christian' simply acknowledges the faith that I once had and the cultural paradigm I grew up in. I also think Jesus seems like he was a good guy, divine or otherwise. As a friend puts it 'Jesus was a social worker'. I like that.
Humanism makes sense to me, although I'm agnostic rather than atheist. It is postive and inclusive, seeking out meaning, purpose and takes responsibility for the common good. Weirdly, I quite like going to church. I like the quiet meditative moments, beautiful buildings and the singing.
So, I guess I'm open to sharing my life with people of all views,as long they respect mine, but not those who belittle. Bigots – it seems atheists can be as closed as any religious fundamentalist - are not welcome in my life. That particular atheist would be shocked to learn that's how he appears.
Of the encounters below, I've had two conversations on the subject – from completely different perspectives. One with a man who, in his early forties, has decided that after all he does believe in God, and hasn't quite decided what that means for him yet. He is open to exploration and acknowledges his views will grow and change.
The other was an adamant atheist. An atheist who was scornful about those who do hold religious views, have a faith or any kind of spirituality or curiosity. He's made his judgement, and believes himself to be correct and all others wrong. This was a huge turn off.
Until my parents became ill about five years ago, and caring responsibilities kicked in with full force, I did believe in God. I haven't ever rejected God, but instead found myself abandoned. That sense I had of a dialogue disappeared. I was upset by this, and sad that when I needed someone, something, anything to bring relief to my life that that solace and refuge had gone.
I'm not a great fan of religious dogma and I've always struggled with the church as a formal institution (although I do appreciate the community that it offers). Over the years I've explored my faith (or lack thereof), read and discussed the issue with many. I've engaged with it. I've listened and I've challenged my views. I respect the choices and beliefs of others. It is not for me to judge, which is why the staunch atheist's dismissals irritated me. It told me more about him as a person and his limited degree of empathy than many conversations might have.
The uncertain believer was open to listening, sharing, acknowledging and not judging, which in itself surprised me. I've known him for many years, ordinarily he's man of very strong views - politically and otherwise.
So, where do I stand on all this now? I would loosely describe myself as Christian Humanist.....it's the closest I can get to something that makes sense. But, labels are only labels.
A sense of spirituality exits for me, in that I do think about these things and I'm overawed by moments in life that go beyond and by beauty in its many shapes. These moments, however, are often very ordinary.
If spirituality is a journey of understanding, seeking wisdom, value and hope, looking harder and deeper and acknowledging that there is more than the individual, then it is important to me and the connections that I make.
The 'Christian' simply acknowledges the faith that I once had and the cultural paradigm I grew up in. I also think Jesus seems like he was a good guy, divine or otherwise. As a friend puts it 'Jesus was a social worker'. I like that.
Humanism makes sense to me, although I'm agnostic rather than atheist. It is postive and inclusive, seeking out meaning, purpose and takes responsibility for the common good. Weirdly, I quite like going to church. I like the quiet meditative moments, beautiful buildings and the singing.
So, I guess I'm open to sharing my life with people of all views,as long they respect mine, but not those who belittle. Bigots – it seems atheists can be as closed as any religious fundamentalist - are not welcome in my life. That particular atheist would be shocked to learn that's how he appears.
Wednesday, 27 May 2009
A year...
to the day that my newphew was in hospital having life saving and devastating heart surgery; a year less a day since I was visiting two parents in two different hospitals both having had accidents because of other illnesses; a year less two days since I split up with my last serious ex. All that was important to me was vulnerable, and so was I.
A year later, I'm not glad any of those things happened but they were the catalyst for me to go places I never thought I could, starting a chain of events that have left me far better. It has been a strange and incredible year. Today I must at least acknowledge those changes and achievements.
A year later, I'm not glad any of those things happened but they were the catalyst for me to go places I never thought I could, starting a chain of events that have left me far better. It has been a strange and incredible year. Today I must at least acknowledge those changes and achievements.
Sunday, 26 April 2009
Re reading the past
Thinking about the past is an odd thing. I’ve spent the afternoon clearing out a suitcase full of stuff that I moved here with two years ago and have never opened. Lots of letters. I re read many of them. Some lovely, some fun, some frustrating and some upsetting.
I read all the letters my grandpa sent me whilst I was a boarding school for sixth form. I don’t think I’ve read then since. It was lovely to think of him and his struggles with typewriter ribbons and the like! He the wrote the last one days before he died. He was a wonderful man and I still miss him. It has made me wonder if he’d be proud of the person I have become. I hope so. He would be hugely proud of my professional life, and he’d probably adore that I continue to play his fiddle, even though I have a better one, it is his and I love it. Music was his gift to me. He would be disappointed in some of my bad behaviour. He would be sad hat I don’t have a family of my own, but he would be sad for me, rather than being sad that I hadn’t produced great grand kids if that makes sense. He would be sad that my faith has disappeared. He was so pleased when I was confirmed, and wrote to me of the importance of it. He would be glad that I am home and helping my parents while they need it. He was a great friend and a bit of a confidant, something I have lacked with my parents. He would tell me I am like my mother.
I read all the letters my grandpa sent me whilst I was a boarding school for sixth form. I don’t think I’ve read then since. It was lovely to think of him and his struggles with typewriter ribbons and the like! He the wrote the last one days before he died. He was a wonderful man and I still miss him. It has made me wonder if he’d be proud of the person I have become. I hope so. He would be hugely proud of my professional life, and he’d probably adore that I continue to play his fiddle, even though I have a better one, it is his and I love it. Music was his gift to me. He would be disappointed in some of my bad behaviour. He would be sad hat I don’t have a family of my own, but he would be sad for me, rather than being sad that I hadn’t produced great grand kids if that makes sense. He would be sad that my faith has disappeared. He was so pleased when I was confirmed, and wrote to me of the importance of it. He would be glad that I am home and helping my parents while they need it. He was a great friend and a bit of a confidant, something I have lacked with my parents. He would tell me I am like my mother.
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